American College of Phlebology Provides Update on the ACP PRO Venous Registry
April 18, 2017—The American College of Phlebology (ACP) announced that the ACP PRO Venous Registry's database now contains more than 19,000 unique patients and 77,000 patient records from 99 physicians in 90 locations. The ACP PRO Venous Registry is a dedicated venous research database populated with data from participating practice electronic medical record (EMR) systems. The data are available and can be used to conduct meaningful, evidence-based research.
Under the leadership of Marlin Schul, MD, and Willy Chi, DO, the registry collects both physician and patient reported outcome (PRO) data. The registry includes data from Vein Clinics of America, and the ACP advised that discussions are in progress to add Centers for Vein Restoration (CVR) and Circulatory Centers, along with three certified records (EMR) vendors—StreamlineMD, Aprima, and Medstreaming.
According to the ACP, the registry both eliminates redundant manual entry and provides more than 600 data fields specific to deep and superficial venous disease. The ACP PRO Venous Registry data provides investigators and practitioners insight into diagnostic and treatment efficacy through:
- Treatment outcome benchmarks
- Venous disease patient demographics
- Quality-of-life indicators based on treatment options
- Accurate and comprehensive vein care statistics
- Commonalities in treatment protocols
ACP stated that the registry represents the most comprehensive picture of vein care through the collection of both physician and patient reported data. As science advances, the system will grow without limitations, allowing an infinite number of new diagnoses, procedures, and treatments to be added quickly and easily for future use. As patient and payer needs continue to change, verifiable data in clinical practice is more important than ever. Understanding the scope of venous disease, the most effective treatment options, and how those options affect quality of life for patients, will improve patient care and patients’ lives, as well as allowing for engagement with payers, policy makers, and the public.
In the ACP announcement, Dr. Schul commented, “There are tremendous pressures in our specialty: disease states that are unrecognized, patient outcomes are largely nonexistent, and declining reimbursement for procedures. Additionally, the patient’s voice is critical. When captured, this allows us to identify both the quality of life and economic benefit as perceived by our patients.” Dr. Schul added, “If you are serious about veins and wish to continue to be reimbursed for your work, you should seriously consider registry participation that will allow you to not only easily capture your data, but will also allow patient involvement.”
Dr. Chi is the first to utilize the registry resources with a study entitled, “Health-Related Quality-of-Life Questionnaire in Compression Therapy and Epidemiological Pattern of Registry Participants.” Dr. Chi presented the findings (Abstract PL54B-08) at the ACP Annual Congress held in Austin, Texas, in November 2016. The study will be published in Phlebology later this year.
In 2016, the ACP announced that the PRO Venous Registry was designated as a meaningful-use specialized registry by the Centers for Medicare & Medicaid Services as part of the agency’s Electronic Health Records Incentive Program. More information about the registry is available at www.phlebology.org/registry. The registry dashboard can be viewed at www.veinstats.org.