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September 2010 Supplement
Providing New Tools and Resources to Improve the Care of Patients With Vascular Diseases
Secretary and Chair of Communications Committee,Vascular Disease Foundation Medical Director,Non-Invasive Vascular Laboratory and Staff Physician, Cleveland Clinic, Cleveland,Ohio
When the Vascular Disease Foundation (VDF) was created in 1998, few sources of patient information on the risk factors, symptoms, and treatment of vascular disease existed. The Internet was in its infancy and patients got their information from health care providers, friends, or the local library. Testing for vascular diseases such as peripheral arterial disease (PAD) was often not conducted, even for symptomatic patients. A 1999 survey of primary care providers found that 57% reported seeing six or more patients with intermittent claudication and diminished pedal pulse each month, yet none specifically suggested obtaining an ankle-brachial index (ABI) for these patients.1
A search today for the term peripheral arterial disease on Yahoo.com, bing.com, and MSN.com all yield over 4 million results, which include sources such as nonprofit health organizations, hospitals, medical online publishers, newspapers, and blogs, as well as companies with a principal business of selling medical devices, medications, vitamins, and supplements. It is truly overwhelming for the person wanting accurate, credible information.
The VDF was founded with a desire to fill this enormous void of information for the public about vascular diseases. From the beginning, VDF provided information that was evidence-based and trustworthy. A multidisciplinary scientific medical advisory board reviews all information before it is published online or in a brochure or magazine article. The VDF now has information on 21 vascular diseases and conditions on its Web site (www.vdf.org) and provides educational information through brochures, audio HealthCasts, flyers, and a free public magazine, Keeping in Circulation®. The VDF hosts a monthly interactive “Ask the Vascular Expert” live chat, which gives patients the opportunity to pose questions to nationally recognized vascular disease experts. Awareness campaigns conducted by The VDF's P.A.D. Coalition and Venous Disease Coalition have reached millions with information on the risk factors, warning signs, and consequences of common vascular diseases. Resources are also available to help clinicians educate their colleagues and their patients. Visit our Web sites for access to slide libraries, reproducible patient handouts, and more: www.vdf.org, www.padcoalition.org, www.venousdiseasecoalition. org, and www.thisisserious.org.
The following is a review of some of the VDF's resources.
VDF WEB SITE
As the initial point of entry to many resources for patients
and providers, the VDF Web site includes patient information
on a wide spectrum of vascular disorders ranging from
venous thrombosis to PAD to thoracic and abdominal
aneurysms and less common disorders such as vasculitis,
fibromuscular dysplasia, and congenital vascular malformations.
The Web site also provides links to a series of regularly
updated interactive and social media resources. Visit
www.vdf.org for more information.
KEEPING IN CIRCULATION—THE
ESSENTIAL SOURCE FOR PATIENTS
WITH VASCULAR DISEASE
The VDF has converted its Keeping in Circulation newsletter
into a full-color magazine format. Targeted to patients
with vascular disease, this free quarterly magazine is filled
with the latest information and tips for managing and coping
with vascular diseases. In addition to personal stories of
men and women facing and managing vascular disease, the
magazine features entertaining departments such as
quizzes and favorite recipes. Subscribers also receive information
on new VDF programs and resources. Keeping in
Circulation is mailed to patients and their families, medical
professionals, and friends of the VDF. Encourage your
patients to visit www.vdf.org/keeping-in-circulation to register
for a free subscription or sign up and get a free copy for
your waiting room. The magazine can also be read online
at www.keepingincirculation.org.
PAD EXERCISE TRAINING TOOLKIT
The VDF and the American Association of
Cardiovascular and Pulmonary Rehabilitation (AACVPR)
recently launched the “Peripheral Arterial Disease Exercise
Training Toolkit: A Guide for Health Care Professionals.”
This valuable new resource can help health professionals
develop supervised exercise programs for patients with
intermittent claudication. Clinical practice guidelines for adults with PAD stress the importance of supervised exercise
to improve functional capacity, decrease symptoms,
and achieve cardiovascular benefits. The toolkit includes
information for exercise and rehabilitation professionals to
implement appropriate and safe supervised exercise programs
as well as practical tools such as sample brochures,
marketing, and staff education materials. Explore the toolkit
at www.vdf.org/rehab-toolkit/index.php.
THE INTERACTIVE WORKBOOK ON PAD
To help patients with PAD live better with their disease,
the P.A.D. Coalition has launched the Interactive Workbook
on PAD. This new tool works like an online booklet, with
turning pages, narrated text, videos, graphics, printable
handouts, and quizzes. It covers PAD risk factors, symptoms
and diagnosis, and the key components of disease management
to improve cardiovascular health and walking ability.
The workbook also reviews what to expect if you require
surgery or other special procedures for PAD. The workbook
is free and can be accessed online at www.mypadguide.org.
To accompany the new online interactive workbook, the Coalition has produced a printed version called Peripheral Artery Disease: A Self-Care Workbook. This illustrated 32-page guide walks patients through diagnosis, treatment, testing, special procedures, and other aspects of prevention and care. While supplies last, hospitals, health plans, and clinicians can order free, bulk copies of a printed version of the workbook at www.vitalitycommunications.com/padbook/.
VENOUS THROMBOEMBOLISM TOOLKIT
The Venous Thromboembolism (VTE) Toolkit is a summary
for clinicians of some of the key concepts in VTE and
anticoagulant management. It has been designed to be a
practical overview for health professionals who care for
patients who are at risk for VTE, and its content has been
carefully selected to reflect current, evidence-based knowledge
in the area of VTE. Each chapter can be downloaded
in PDF or PowerPoint format. Slides can be used in professional
education presentations, and the PDFs can be used
as presentation handouts. Slides from each chapter can be
mixed and matched to suit an audience's needs. Explore
the VTE Toolkit at www.venousdiseasecoalition.org/vtetoolkit/.
NEW RESOURCES FOR PAD SCREENING
PROGRAMS
Planning and hosting a PAD screening event can provide
opportunities for increasing awareness of PAD and
raising a practice or hospital's profile in the community.
Conducting a screening event can involve juggling many
elements, from identifying and securing a location, to promoting
your event and even managing details such as whether or not to provide refreshments. The P.A.D.
Coalition has recently released new resources to help with
planning and executing a PAD screening event. Screening
guidelines, planning tips, promotional materials, and more
can be found at www.padcoalition.org/screenings/screening-
resources.php.
THE PAD EDUCATION NETWORK
The PAD Education Network is a membership program
for medical practices, multispecialty clinics, hospitals, and
health plans committed to the care of patients with
peripheral arterial disease. Members receive PAD clinical
practice tools, resources to build referral networks, video
programs for PAD patient education, and tools to recognize
one's participation in the Coalition. Learn more at
www.padcoalition.org/join-edunet/.
100 QUESTIONS AND ANSWERS
ABOUT PAD
100 Questions and Answers About Peripheral Artery Disease provides clear, authoritative answers to common
questions raised by patients and their families as they navigate
the world of PAD. Renowned experts Drs. Alan Hirsch
and Emile Mohler III, have written an accessible and informative
book for patients who want to understand their illness
more clearly. Featuring information about common
symptoms, the diagnosis process, treatment options, and
risk factors for related conditions such as atherosclerosis
and claudication, this text is an invaluable resource for anyone
coping with the physical and emotional aspects of
PAD. To order, visit the VDF's online store at
www.vdf.org/estore.
ADDITIONAL PATIENT RESOURCES
The VDF has a variety of additional educational online
resources available for your patients.
Vein and Artery Map
To assist patients in understanding the “highway” that is
the vascular system, the VDF has created an interactive
map so patients may navigate the blood vessels that carry
the blood. This is a great learning tool to use with your
patients and can be found online at www.vdf.org/interactive/
vein-artery-map.php.
HealthCasts
For the past 2 years, VDF scientific advisory board members
Drs. David Meyerson and Kerry Stewart have produced
over 37 audio podcasts. Each episode is 20 minutes
in length and interviews some of the foremost vascular surgery
and medicine experts on a variety of topics suited for
patients. Archives for all of VDF's HealthCasts can be found
online at www.vdf.org/interactive/podcasts.
Ask the Expert Live Chats
VDF also offers live online chats each month with a vascular
professional to answer questions on a variety of topics
relating to vascular disease. Each chat is 60 minutes in
length, and transcripts for over 17 chats are archived on the
VDF's Web site. Login information for future chats and transcripts
can be found at www.vdf.org/interactive/ask.php.
Online Support Group
In 2010, the VDF launched an online support group for
patients in conjunction with the Inspire Network. This
online community offers patients a safe and friendly community
where they can share their experience or questions
relating to vascular disease. Direct your patients to
www.vdf.org/interactive/support.php.
YouTube Channel
The VDF's YouTube Channel features a variety of
patient and professional resources including “How Blood
Clots Form,” a video on the ABI exam, and the Surgeon
General's Call to Action to Prevent DVT and PE.
Visit the VDF's YouTube Channel at www.youtube.com/
vasculardiseasefdn.
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